I decided to write my feelings,thoughts,dreams,concerns all on a blog instead of my Facebook since everyone says I have an amazing attitude about my situation. I have an auto immune disorder called Lupus and I am also suffering from kidney failure. People say I have a strong attitude and an admirable one so I decided to take my "voice" to the blogging page and just spill it all out. Enjoy, learn something,teach me something,and most of all cherish life and everything in it :)
Saturday, April 28, 2012
sjogrins....(sho-grins)
So I may have another auto immune disease that is attacking my kidneys called sjogrins disease. It deals with the moisture of thebeyes and mouth. Well...about a cpl years ago rt before Aiden I started noticing I had dry mouth a lot. But after Aiden it got worst. Dry mouth leads to cavities which lead to just unhealthy teeth. I went to dentist after the kidney Dr suggested to get them checked out to make sure nothing else was happening. My teeth are losing the calcium and everything in them. How embarrassing ya know. I smile alot and I smile big! Everyone knows that so it sucks when my teeth chip or I break easily. The first break was when i was pregnant and i fell standing on the bathroom seat. Leave me alone we just moved in I have ocd/add type acts where I like to organize and rearrange everything and it so happened that I needed a clock Hung and bang I fell knocked the tooth out almost all rt before a friends wedding too!! I got it fixed though. The other time was eating a hard chicken tender and it cracked my tooth this was after Aiden was born..and lastly the one yesterday where I tried to open a bottle and idiot me used my teeth and it cracked the same spot that i got fixed a cpl months before. Sigh I'm a big ball of mess basically! I went and got my teeth fixed today and it didn't hurt but it wasn't fun. It's so difficult bc now I'm on a special toothpaste,two mouthwashes. One for dry mouth and one to make them stronger. It's all so crazy to know that from this auto immune disease my teeth are in danger and my eye sight isn't any better! I have to use those eye drops all the time or else I basically go blind. I barely can see and i wear eye glasses. It's ridiculous! It's like a weird hazy layer forms over my eyes and I just can't see its a blur! I laugh it off a lot with my teeth breaking and the blurry vision bc its happening and there is only so much I can do...but laugh and try to make light of the situation. My mouth is also having a chemical reaction like to the steroids, mouthwash,thyroid meds, and anything I eat or drink..my tongue feels burned and irritated alot which sucks bc I love to eat a lot now and its all uncomfortable. Waah waah waah Haha but this is by far the only thing that bugs me about this whole sjogrins crap. My mouth acting weird. I'm getting old..I can't see,my mouth hurts,my teeth are brittle,my knees hurt,I pee on myself,what else. Hahaha 28 ha more like 70 man. But I'm hanging in there..day by day, bill by bill, laughing and smiling the whole way through! thank God and Chris for insurance :)
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A friend recommended I get tested for this syndrome (Sjogrins) because of all the symptoms I told her about. She has it, too. You have made me aware of some symptoms that I was not aware of. I did not know it involved your teeth, tongue, kidneys, etc. My tongue feels like it's stinging when I eat. Not all the time, but a lot of the time. I have the same problem with my teeth, and it is so embarrassing. I also love to smile, laugh big, and enjoy people and life. It's very hard to just forget that I have a tooth missing and that until I get it fixed, it looks terrible when I smile. It will be taken care of soon, though, but still.....To make a long story short, thank you for letting me in on more information that will help me when I go to the doc for the tests. You're right, it's day-by-day. Sometimes moment-by-moment.
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