I decided to write my feelings,thoughts,dreams,concerns all on a blog instead of my Facebook since everyone says I have an amazing attitude about my situation. I have an auto immune disorder called Lupus and I am also suffering from kidney failure. People say I have a strong attitude and an admirable one so I decided to take my "voice" to the blogging page and just spill it all out. Enjoy, learn something,teach me something,and most of all cherish life and everything in it :)
Tuesday, February 12, 2013
my mighty God how great you are!
So me and my husband said this year would be my year. I also had a vision that March is going to be my best month of feeling my healthiest. So I have been super bloated ever since end of November from steroid overload. But went to Drs recently in January and they took me off iv infusions in beginning of Jan and by the end of Jan I was lowered down to 10mg instead of 30mgs ( super ecstatic) my kidneys and lupus are in a stable condition also. So all is great there but my heart want so well..whomp whomp whomp. But hey, if I can make my kidneys and lupus in a stable condition I can get the rest of my body "stable" I can make this body happy again. That is the whole goal to find happiness again!
In Feb I went to a new kidney Dr that is in the same network with my lupus Dr and he is amazing so far. He's just like my kidney Dr aggressive, compassionate, sincere,to the point,and understanding. His goal is to get me off steroids and needing them if I have a flare. Which I know myself I will fight through that flare to bot have to take medicine. So Im really excited about this upcoming months. Bc I will start to new drug, benlysta and slowly get off of prednisone and get my body,energy,and mind back ;) I am slowly losing the "moon face" and the extra bloat in knees and edema in my ankles and feet. The weight gain and the changing of the face and features have put a big depression cloud on me but I'm slowly understanding this too shall all pass..I have been reading 3 daily devotionals and going to church every Sunday. I am giving all my worries to Him and also devoting some time with Him to better myself and I have noticed that the weight is coming off,the stress is coming off my shoulders,those drs visits are getting better (if that is possible even though I hear bad things they are still better for some reason). I'm dealing with emotional stuff but I'm dealing with it with God. He is making me feel a little bit more like old Genn lately. I'm exhausted from getting off steroids but I do feel.better and not drugged up. Life is going to get better bc of my faith in Him. So by march oh yeah we are on the road to happiness ;)
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