I decided to write my feelings,thoughts,dreams,concerns all on a blog instead of my Facebook since everyone says I have an amazing attitude about my situation. I have an auto immune disorder called Lupus and I am also suffering from kidney failure. People say I have a strong attitude and an admirable one so I decided to take my "voice" to the blogging page and just spill it all out. Enjoy, learn something,teach me something,and most of all cherish life and everything in it :)
Thursday, January 3, 2013
New year..new beginnings??
It's the new year!
And I'm sick ;(
I have the shingles just got over Thrush,uti,and ear infection what next man!
Well I notice I'm super swollen all the time now and weaker than normal. Headaches eye aches flares its all back. I go to lupus Dr and they notice all the above and that yes I have shingles and that I need meds for that ASAP..they also say that my body is super weak and I'm not doing well. So back on Solumedrol for three days out of the week. Mwf schedule 30 min process which is usually an hour. She also mentions that I will put on the list to get benlysta a fda approved lupus infusion. It's pricey but I'm willing to try I've heard great reviews. Only thing is its a 1hr infusion but a 3 hr process. I'm gonna be exhausted for sure. I also have to go to kidney Dr bc kidneys are back high. My thyroid is higher also so the meds have changed to see if that will help any. I'm on a lot of meds and I'm praying for a miracle this year. We cannot afford more bills that's for sure. I also have my big surgery coming up.for tubes tied. Sigh..
But this year will.involve more awareness and more positive reinforcement with fundraiser charity events and raising money for all types of charities. I'm getting active and aggressive about all this for sure!! It's taking.my life over but I won't.let it takw me..I'm having shirts made soon and a basketball tournament in Feb can't wait! Xo
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