I decided to write my feelings,thoughts,dreams,concerns all on a blog instead of my Facebook since everyone says I have an amazing attitude about my situation. I have an auto immune disorder called Lupus and I am also suffering from kidney failure. People say I have a strong attitude and an admirable one so I decided to take my "voice" to the blogging page and just spill it all out. Enjoy, learn something,teach me something,and most of all cherish life and everything in it :)
Thursday, December 13, 2012
Me stroke...not quite, but close call
November 30th...three doctors appointments, in laws coming in town, and a happy 2 1/2 yr old!
Go to Kidney dr..results are great say I can wean off of meds woohoo what I prayed for. Then I go to lupus dr and notice Im hot, sweaty, dizzy,fatigue,and have a horrible horrible migraine. Not headeache migraine! They take my bp it's 168/140 or something bizarre heart rate is 112 they rush me to er..I cry bc I'm overwhelmed. I check myself in and they rush me back. They are scare Im going into shock and could have a stroke. They pump me with steroids and high bp meds it's all a blurr. I'm alone, I want to be alone avtuslly. Why would I want anyone else going through this pain and struggle also. I can breathe better being alone. Chris is working alone tonight so he can't come. His parents just made in town So they have aiden ( thank God for that one) my sis is on her way to give me soup and magazine since they say I have to stay overnight. I'm in pain so much pain like never before. On top of pain Im nervous of what if I had a stroke and passed and my last time with aiden was a quick goodbye. He's my world! I start praying over and over just thanking God for everything over and over! They do MRI and X-rays on me again and same thing I'm just really inflamed and need immediate medication through the veins. I can't sleep My heart is pounding out my chest feel like death is coming sadly. They noticed that even when I sleep its pounding and that is where the lovely "enlarged heart disease" comes into play! I laugh and say I just have a big heart ;) but man I feel different now that's for sure. I can't even walk down the street without feeling winded. I have noticed for a while now that when i lay down it hurts to breathe and all but thought it was the meds..my bp is also out of control so I'm on more meds with that. Well Chris gets off work and stays with me for some hours along with Raychell and James..we polish our nails to pass time while the boys talked it was good then they all left and yes even Chris so we could all rest! I was in high spirits. I slept good the meds worked, i got to go home! I did get horrible bruises from the shots in my stomach i still have them and it's almost Christmas! So next days I rest and go to lupus and primary dr to catch up with them. Turns out my lupus got really really out of control to the point of really hurting me in a bad crucial way..the bp hurting the kidneys,the kidneys hurting me,the heart hurting my breathing and living, the INFLAMATION hurting all joints,organs,and muscles. Weewh..I'm just hurt but still alive! Wellin the end result..im back on meds! Kidneys may be ok but the rest of me ain't! So I'm now on 6 pills and solumedroyl ( however you spell) infusion treatments daily for 30min until my lupus levels go down from 90 to below 20%.wish us luck!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment